National Trust Benthall Hall - Late afternoon before I headed to my camp site for the night.
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Wednesday, 30 April 2025
The Good Bits of April 2025
National Trust Benthall Hall - Late afternoon before I headed to my camp site for the night.
Monday, 28 April 2025
Week 17 2025 One Daily Positive and Project 365 - Meet our latest grandchild.
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Word of the Week - Stopped
Time just stopped when Stephanie died on the 7th October 2024. Life goes on and since then we've had 2 new grandsons join our family. One in February 6 days after Stephanie's birthday and one born yesterday that we've yet to meet.
We have 4 grandchildren now and they are our world. When the 5 children were small they were hard work, managing their different needs and activities but Stephanie our eldest was always there and part of it, she was the one who bought our family together. The boys just saw her as their sister and didn't question what she could and couldn't do, just accepted her for who she was, but they all grew up, something that she never got to do.
Another holiday time and time not spent with Stephanie. I'm not getting caught out by events anymore, but it doesn't mean I'm finding events without Stephanie easier. Occupying my time and brain doesn't fill the space, it just highlights how much space I have for her.
We've had a fun filled few weeks with our adult children and grandchildren with lots of Easter activities, camping, days out and time with friends, but there has been no visit with Stephanie, no Easter eggs bought and delivered, no coffees out with her on our way back and forth, calling in to see her on our travels, no taking her out with me while I've done my shopping for everyone else. Different routes driven as there is no need to go via Gloucester anymore.
It's not just Stephanie that died, it's part of our lives that have stopped existing. Being the parent of a disabled adult child, is so very different than being a parent to our other adult children.
All our children left home and live independent lives, including Stephanie. But they have jobs, financial independence, their own homes, partners, children. can make their own decisions, can ask us for advice, talk to their mates, make their own decisions, make their own mistakes, ask for help, ignore us.
They can do anything they want, they can even take themselves to the toilet.
Stephanie left home and moved into supported living, but Stephanie couldn't do any of that. Nothing. Stephanie couldn't speak, feed herself, communicate. Everything Stephanie needed to do, was done for her, other people decided what was in her best interest and every year there were meetings to decide what was in her best interest, she never attended the meetings, it was too disruptive for her, for the meeting.
Her budget, how much, how it was spent, her personal allowance, financial advocate, her staffing levels, her health, her home, her activities, her transport needs, dietary requirements, dentists, meetings for blood tests. Every single thing you do for yourself, every single thing you do for a child, if you can imagine it, it was done for her and every single thing had to be agreed. Not task by task, but yearly, financially and by whom. By us as parents, her carers, social services, health and everyone else who had a financial interest.
It took a lot of our time, not a minute of it was resented, we were grateful of every single bit of support and help we received, but it was time consuming. Phone calls, meetings, emails, forms, assessments, budget cuts, reviews, worry. In between there were problems that needed sorting, staffing issues, safeguarding concerns. 2 years of covid, constant changes of staff, management, ownership of her home, changes of service users, issues with other parents to contend with.
After Stephanie died there was a flurry of activity sorting out her finances, exchanging emails sorting out a few bills, collecting items from her home, a few visits and calls and then nothing.
It all stopped. Everything has just stopped.
Sunday, 20 April 2025
Week 16 2025 One Daily Positive and Project 365 - Happy Easter
3 migraines this week. It's so frustrating. Think the easiest thing to do will be to record when I don't have a migraine or a headache.
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Word of the Week - Acceptance.
There are a couple of things niggling me at the back of my mind that I'm worrying about at the moment. Things I have no control over, but if they happen then life as I know it will change in a big way. It will be devastating and the impact will be huge with a massive ripple effect. It's not health related, it's to do with people.
I've no control over it. But what I do have control over is how I deal with it. I have to accept that people will behave in bizarre ways and whilst their intentions aren't to hurt others, sometimes hurt is inevitable.
Acceptance is hard. My father's death in 2017 was hard. I accepted he had died. I just never dealt with the trauma of his death.
I've accepted our daughter died, but again, it was another traumatic death, that I witnessed, that I didn't walk away from.
I could've left the room on both occasions, but I didn't, I chose to stay put, chose to stay with my father and my daughter as they took their last breaths. I didn't need to for me. I probably didn't need to for them, but something made me stay. I said after watching my father die that I was never going to do it again, but I did and I have to accept that. I chose to stay, however traumatic.
I'm still struggling with both these events. I've been diagnosed with PTSD, I've received targeted therapy, I'm on medication, I've had a mental health plan in place. I've reached the end of the support that is available to me. The help and support I want is not available. The help and support I wanted was in the first few days and weeks.
There was help and support from some amazing people and I will be forever grateful, but it has taken 6 months for me to accept that the people I thought would help just weren't there, they didn't call, they didn't didn't come round, they didn't put aside their differences, they didn't make us their priority.
It's taken 6 months for me to accept this, to move on from questioning why? What did I do wrong for them not to care about us when we needed them the most? For them not to drop everything for us in our hour of greatest need?
With acceptance comes peace. For too long I've been focusing on regret. I realise now people come in and out of your life, some for a long time and some for a short while. But it's the quality of the time spent, not the quantity.
I accept it's hard to know what to say to when someone dies. I've been in that situation so many times.
I accept that it's hard to know whether to call in or worry that'll you'll be intruding.
I accept that while you'll thinking about the above, time passes, then you start to feel awkward about the gap left.
I accept that maybe some people will feel triggered and can't cope.
But no matter how hard you are finding the situation, for us, it was harder than you could ever imagine and that knock at the door, that message, that late night phone call, that invite for coffee, that hug and and even those awkward silences meant the world to us and always will.
We accept our circle of friends and people we can turn to has grown smaller but it has also grown stronger.
Monday, 14 April 2025
Week 15 One daily Positive and Project 365
I was really irritated on Tuesday, Peter was unwell and he asked me to cancel his dental appointment. I called in on the way to work at 8am but they didn't open till 8.15am. I rang at 8.20am and 8.40am but both times the phone was engaged. I had to teach at 8.45am, so I rang back at 9.45am. His appointment had been at 9.10am. they told me I had to pay a cancellation fee of £48 before I could reschedule. I said OK, I'd pay and rebook at 4pm. I then got a lecture about missed appointments. I told her I'd tried calling but the phone was engaged and the receptionist was really hostile and antagonistic towards me. I told her again I would pay after work and hung up. After work I called in, asked to make a payment for a missed appointment, then once the bill was settled I asked to speak to the practise manager and made a complaint. I pointed out the 'we have the right to work in a safe environment' sign and informed her about the morning conversation and whilst I appreciate the staff must face argumentative clients, they need to listen before becoming defensive and they could probably save 50% of the abuse they receive.
We had a lovely day on Monday. It was the 6th month anniversary of Stephanie's death. I'd requested the day off work. My mum had given us a 'In Loving memory Rose' which our grandson and I planted together.
Day 97 A lovely last day with son and grandson. Off to the park, Easter treats and some gardening.
Grandchildren, gardening, camping, school holidays. Birmingham City winning the league.
6 months without Stephanie - Losing a child
Days out in the campervan - Winter 2024/2025
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Word of the Week - Post
No, I haven't been to Kuala Lumpur. This is a post card left over from a trip there in 2023.
I actually wrote it and sent in in March 2025 from the UK.
But for the person who received it this week in South Africa, it wouldn't have been a surprise for them to think it had taken 18 months to reach them.
If you live in a country where things work, you take it for granted.
In the UK we moan about the cost of postage, the late delivery times, items going astray, deliveries to the wrong address. But if you live in a country like South Africa, it's rare that anything makes it to your door at all, ever.
We lived there for 4 years and as an expat, we relied heavily on the post. From birthday cards for the kids from family to letters from friends and important documents such as replacement passports. It was a nightmare.
Even recorded, signed for, deliveries and DHL (other agents are available) had no guaranteee of making it to your door as the postal system just didn't work, so you had a PO Box address that was expensive and even then, you were lucky if anything, ever at all made it into your PO Box.
On many occasions I'd track parcels and letters sent from the UK right to the sorting office and even receive a slip in the PO Box only to be told 'no we don't have it' I'd show them the slip, the tracking number and they would lie to my face or demand a fictional payment to 'look for it' and at that point you knew it had been stolen or in some cases just thrown away.
Once a parcel from my friend was returned to her house 18 months later, having sat someone in South Africa with no attempt ever being made to have delivered it. Another time a parcel was returned from New Zealand, why it went there, I'll never know.
There were times when empty envelopes arrived with no letter inside, just a torn envelope.
I would have even less success posting items from South Africa, even post cards could take months to arrive in the UK. I'd wait till family and friends visited or Peter was travelling and get them posted in the UK and I'd write my Christmas cards in August and leave them with my mum, when I was over on a visit, to post in December.
After we left South Africa, I posted a birthday card to a friend, I asked at the post office for a certificate of postage, even the woman who sold me the stamp said not to bother as she didn't expect it to get there.
I'm off to Paris in June to see for my friend for a weekend, it's becoming an annual trip. I will write the birthday and Christmas cards and some letters for her to take home with her like I did last year, she will arrive with letter etc like last year also for and from a couple of friends. She is my post mule.
It was her house I sent the post card to, the post card was for a mutual friend. For some reason her postman will deliver the post, the friend it is intended for, for some reason, her postman seems to just bin all her cards and letters.
And then little miracles would happen, a letter would arrive address like this, within 10 days of being posted and you'd wonder just how it made it through.