National Trust Benthall Hall - Late afternoon before I headed to my camp site for the night.
Wednesday, 30 April 2025
The Good Bits of April 2025
National Trust Benthall Hall - Late afternoon before I headed to my camp site for the night.
Tuesday, 17 September 2024
Birthdays no longer celebrated
I took this photo on the Sunday on our last day out together, he died on the Tuesday. I'm so grateful for the those last 3 days we spent together. I'm so grateful for being in the UK when he died. But I'll be honest, I'm still not grateful, 7 years on, that I was there when he died.
Friday, 28 October 2022
Family, friends and a fun fortnight.
We see our eldest grandchild and their parents on a regular basis and our grandchild in Northern Ireland as often as we can, but it is rare these days to get any of them together in groups, let alone all 5 kids with their families/partners. The last time we managed all 7 of us together was in 2017 in a car park in Cheltenham for this photo.
This week however we've had child 3 and his girlfriend staying with us from Australia and child 2, his wife and their child have joined in where they can, as well as visits to see parents, grandparents and friends popping in to say hi.
It's been hectic, full on, I've had a migraine, the house is a mess, but I've loved every minute of it and can't wait till we can get together again in small groups. Incidentally that will be next weekend in Northern Ireland for our 2nd grandchild's first birthday with his parents child 4 and wife, with child 2, his wife and their child coming over also.
But first we have Halloween to do with child 2, his wife and their child this weekend.
Child 1 and 2.
Wednesday, 17 November 2021
The worry about making announcements on Social Media.
Our son and his wife had a baby. Born on November 5th. Obviously mum and dad's priority was that of their new family.
We were called at 3am and a photo was sent.
Obviously, we didn't share that photo online. We didn't post their news online. We were more than happy to wait for them to get home from the hospital, tell their extended families and friends, settle into new life before they make any birth announcement online.
They had the advantage of the due date being the 9th November, so it'll be a while before people start asking 'is the baby here'
They had the call from the hospital on Tuesday, to let us know they were going in. Obviously again, I didn't post about it, I didn't tell anyone. It wasn't my place, people will ask for updates. People might start contacting them, asking for news.
We headed over on the ferry on Saturday night, we didn't post about it as people would know why we were going, there must be a baby for us to be making the journey. In fact we didn't even tell our son and dil we were on our way over so they could settle in without having to worry about us descending on them, we just wanted to be that bit closer so when they called to say they were home and tell us we could come over, we'd already be nearby.
When our first grandchild was born 2 years ago, the logistics of visiting were harder as we were in Dubai and the due date coincided with another sons wedding. I arrived a few days before the baby was born (a week early), popped over for the wedding where my husband joined me then both back to the mainland to spend time with the baby before returning home.
The birth was announced on Monday and all of a sudden a great weight was lifted off me. Friends who were asking about the baby could now be told he was here, phone calls could be had, I could chat freely about the new addition in our lives. I could forward photos to friends, I could talk about our new grandchild freely without worrying about someone posting a message online and spoiling their announcement.
When my kids were born we didn't have social media to worry about, you just told people when you saw them. Made a few phone calls to family and people had to wait till you'd had photos processed and they arrived in the post, or they made the journey to visit the new born. In fact I waited a week before I made my social media update in my weekly blog post, only because people then new I'd travelled to Northern Ireland.
Do you have similar worries?
Thursday, 23 September 2021
The importance of wearing socks correctly with a disability
How do you wear yours?
With no verbal communication or the ability to express their needs other than crying, laughing, dropping to the ground, which can all mean happy, sad, angry, hungry, fed up, it is important that our eldest child wears their socks inside out.
It's often considered to be a control issue from the parents of a child in care, often it is the only area of control they have when their child moves into a care facility.
As a parent and as a carer, I've seen and been on both sides.
I used to work in a Residential home for children who were severely affected with their autism. One set of parents would inspect their child's wardrobe on each visit and complain about the staining on clothing and odd and missing socks.
It would upset the staff who all did their best to keep up with the cleaning, personal hygiene, laundry, cooking, education and just life in general with someone who would lash out, bite staff, run away, sit naked in the car park. Just keeping their child, others and themselves self was a full time job.
But I understand where the parents were coming from. They spent a fortune of good quality clothing that their daughter liked. You've no idea how many times we had to return to places often after our shift to collect items that had been 'posted'
Their 16 year old daughter was in care because they could no longer manage these things by themselves, the only area they had control over any more was the clothes they bought her.
We've been battling with our eldest's care staff for years over their socks. We don't care if the socks are odd or if they get lost, if they're dirty at the end of the day, all we care about is that they are put on inside out.
It's not a difficult request, it is on their care plan and we have explained the reasons why, numerous times.
So why?
With mobility issues and having been born with talipes, it is essential their feet are looked after, not having walked until the age of 8, mobility is the only aspect of their life they have any control over.
There used to be special boots made, but we were able to source supportive boots on the high street, which support the ankle and the arch, enabling them to walk, in comfort, without feet getting sweaty and more importantly no rubbing to cause blisters.
Wearing socks the right way can cause blisters, where the cotton and the pattern can rub the foot and as explained above, finding out what is wrong when their reaction ranges from crying through to laughter regardless of the issue, is a process of elimination, starting with drink, food, pad change, temperature, injured, in pain and if so, where?
Usually if the feet are hurting they just stop walking, they can't tell us, can't just fiddle with their footwear themselves or point or lift their foot up to indicate something is wrong.
It's the only request we make of the staff, we appreciate all they do, we make the request not only for our eldest's benefit to maintain their mobility, but for the staffs benefit so they can attend activities, go for walks, visit places easier with a mobile adult, rather than having to push a wheel chair or have to lift from seat to car etc.
Monday, 13 September 2021
How do you deal with a NIMBY? (not in my backyard)
We've had some horrendous neighbours over the years, from the woman who built a brick wall on my land blocking access to my parking when we were selling the house (it was empty, we'd already moved) and the drug dealer over the road with domestic abuse, police raids and parking a bus in the cul de sac, to the half way housing over the road from us with fights and late night parties to the inconsiderate drunk and his mates breaking a door down at 2am in a communal block of flats where we own an apartment we bought when we were visiting the UK.
I'm sure with 5 kids we've caused upset to the neighbours with shouting, fights and kicking footballs and I know we've upset our neighbours with two sets of 'tenants from hell' over the past 10 years while we were living abroad.
But this post is about recent events with our daughters neighbours.
Our eldest child is 32, she is profoundly disabled and lives in a group home in Gloucester. She's been there 12 years, living with another resident and a 3rd on and off. It's a bungalow on a street, just like anywhere else and for the purposes of this, it's in a large cul de sac and the garden backs onto the M5.
We've had words with a neighbour opposite in the past about parking in front of their drive. Their definition of 'in front of their drive is opposite and half on the road, half on our daughters drive. They have a large, gated drive, for which they can turn around in, one car and we rarely see visitors when we go there. The road is more than wide enough to allow cars past if one is parked on the street.
But recently a 3rd resident has moved in, so more staff, more family visits, more cars. But the neighbours have decided to have a go over recent months and it's not been pleasant.
The staff and management informed us they've received letters through the door, neighbours calling round to complain about taxi's making the street look untidy and the noise from 2 of the residents, squealing and spoiling their ability to sit peacefully in their gardens. I'll remind you again that the gardens back onto the M5, you can hear the noise of the motorway through closed windows most days.
Life is hard enough with a disabled child. It's also NOT an easy decision to find 24/7 care for your disabled relative.
'how can you put a child in care?'
'just giving your child away'
'I'd never do that if it was mine'
Well until you walk in our shoes, you shouldn't judge and mostly these comments have come from people who actually have a disabled relative. We don't judge their reasons for keeping their adult child at home, often at the expense of other family members, for going a full nights sleep for the past 30 years, or holidays, or days out, or spending a day without being hit, or having curtains still hanging over the windows. Add to that physical age of parents of an adult child, the personal care needed. Even getting in and out of a car is a struggle for me alone and I know for a fact I would not be able to get her in the bath unaided.
We go to the supermarket, she spits, she grabs at others, she yells out, she will pull hair if you're too close, she'll try and sit on your lap if she's tired. We take her out together or with a friend or one of the other adult kids. We do our very best to minimise any disruption to other people. We avoid busy cafes, pubs, shops, tourist areas. We stick to supermarkets with level floors, good lighting, large cafes, decent toilets, we avoid getting in and out the car. We don't stop in the middle of the aisle to piss you off, we don't yell out for no reason.
As parents we have to try and work out what the problem is, she could be in pain, hungry, need her pad changing, just randomly happy. The floor colour could've changed and we've failed to notice and for her it could be a small step or a 1000ft drop. We just don't know.
We've had people tut loudly, ask us to 'do something about it' and once had a woman ram her with a trolley to try and shake her off holding on while I was unloading at the till.
In general though people are pleasant and helpful when asked, cafe staff will bring trays of food to us as queuing for her is difficult and she will grab at the food in a the blink of an eye. People will hold doors, help with steps if she's in her wheelchair. Kids will come over and ask questions and we tell the parents it's ok to ask. Occasionally someone will tell us, in a nice way that their neighbour/friend/family has one like this at home and they understand and tell us not to worry about the noise (we don't worry)
Mostly we get asked 'did we know before she was born?' my response is always whilst I'm not her birth mother, I've been 'mum' for 21 years and known her since she was 8, I often wonder if what people mean is 'if it was known she'd be like this, do you think she'd be here now?' I think I'll ask that in return next time.
Anyway, like I said 'life is hard enough' without the current situation at her home.
I firmly informed the neighbour who had a go about parking that she lacked compassion and was a throughly unpleasant woman and I hoped she never found herself in this situation with people like her as neighbours and if she wanted to complain further, I strongly suggest she complains to the council about the disabled people living in her street, who make a bit of noise now and then when they're enjoying their own garden that also backs onto the M5 on the few weeks the sun shines and whose staff members (on the minimum wage) use a taxi rather than walking home at 9.30pm as suggested by another neighbour or at least get their taxi ordered to the next street, so theirs doesn't look untidy.
I don't think this will be the end of it, another neighbour who was weeding by his front door, blatantly came out the front and was half heartedly weeding the drive when we arrived back and the neighbour opposite had enlisted support from someone else and they'd set up table and chairs in their driveway to stare at us on our return.
Have you ever experienced something like this? I'd love to hear from you if you have.
Monday, 6 September 2021
Feeling calm and patient
Yes, I've been feeling much calmer over the past few months and my tolerance is improving, but so would yours be with no kids at home and finances to worry about, no work, no stresses, no international moves or hotel quarantines and delayed containers, just peace and calm, dog walks, coffee and chocolate.
A few years ago, child 3 exclaimed that 'mum is calmer these days' My husband and him failed to recognise it was because there were no longer 5 kids at home, pulling me in several directions, no ex's causing us crap and 1000's of miles away from everyone else.
Last month, my husband also exclaimed that I was much more tolerant these days towards him, patient and calmer, but he failed to recognise, he is no longer going out to work, leaving a trail of glory behind in in the form of washing up, wet floors in the bathroom and not leaving me on my own for long periods of time while he travelled with work.
I've never been able to just go out the door since I had my first child. I worked up until 2016, managing 5 kids, pack lunches, school runs, activities, fights, arguments. I would get so wound up with piles of washing up and coming through the door with a food shop and not being able to just put it all away.
Yes, it was just 1 cup, 1 bowl, 1 child who made a sandwich, but it would all pile up in the kitchen, then when space was full in and around the sink, it would just be dumped somewhere else.
This was a bit of washing up from the night before, a couple of glasses and tea/coffee cups from the morning. I was cooking the blackberries and thought I'd wash up in one go. Peter wanted his breakfast and I told him just to leave everything on the side and I'd take care of it as I went along.- less after school activities
- no involvement with PTA, Scouts, etc
- caterers for parties and shop bought cake
- more money
- bigger house
Thursday, 5 August 2021
Missing in action - My motivation
When you have all the time in the world to do nothing in, one tends to do nothing.
For the first time since I was 20, I actually have nothing to do.
I mean absolutely nothing.
Other than walking the dog, eating, cleaning the house and making sure I take a shower, there is nothing going on.
I had my first child at 20. By 28 I had 2 more children, by 30 I had remarried and inherited 2 further children. I was working full time and studying. By the time I was 40, we had packed our lives in and moved abroad.
For the past 10 years as an expat I've been juggling 2 homes over 3 countries, managing kids, lives, booking flights, trying to keep up with everyone, juggling 100 different things on a daily basis and aged 50, I'm now back in the UK with my husband, the cat and dog we picked up in South Africa.
We're back in our family home that I spent the time during covid repairing, fixing and painting with a few trips back and forth to see Peter in Dubai and packing up all our belongings and shipping them back to the UK, with the 2nd and last container arriving in July. It's all unpacked now and we're just taking stock of what we're going to do next.
We'll be staying put in this house for the foreseeable future, neither of us can face another move. I've lived on 3 continents and had 17 permanent homes as well as many short term stays as we've moved around.
We bought the house in 2002, it was 4 years old when we moved in, we had a loft and garage conversion back in 2007 and I've just replaced the carpets and a couple of windows. We need a new kitchen and bathroom and have plans for the garden. But as the kitchen, bathroom and garden are functioning, we're not in any hurry to get any work done.
I'm currently glued to the TV with the Olympics, I've sorted out birthday gifts and written cards for the month. I've kept up with the washing and ironing. I've written letters, walked the dog, enjoyed take out coffees, weeded the garden and harvested some crops and picked blackberries. I've paid the bills and renewed the car and house insurance.
I've had a couple of meltdowns with service providers about their lack of customer service and failing to provide the service I've paid them for. I've been frustrated at the sudden change of pace of life, going from being on my own in the day and when we've both travelled to being at home full time with Peter now he's retired, it's a huge change for both of us and takes some getting used to.
We really need to kick our arses into gear (once the Olympics are over) decide what work will be done on the house and who is going to do it.
I'm struggling to find things to blog about, everything seems boring in comparison to the last 50 years of my life. I stopped writing my weekly blog posts as it all seems so mundane. I found plenty to write about each week during covid. I'm not bored, I'm happy to be living a more simpler and quieter life.
Thursday, 18 February 2021
Crying over spilt milk and other stuff
The wine, radox were added to make up the minimum basket shop and the chocolate eggs are for child 5.
I then decided to try click and collect orders for the other stores at the retail park while I'm there, but I need to collect either within the hour or place the order tomorrow or wait 2-3 days for everything to be in stock, so I cancelled that idea. I'm trying to avoid going out/near people other than daily dog walks.
I got full on dressed up to collect my shopping today, I stopped smoking end of last year and have been none stop thinking about not eating as a way to combat stopping smoking. Not thinking about cigarettes has been easy, but the 8kg weight gain now has to go.

This constant adapting to climate, covid regulations, travel requirements, culture, home, being alone is all really wearing me down now. I can't even get the dog food order right. I travel with a 30kg suitcase but appear to have no idea online how large 2.5kg is when it comes to buying dog food.
Tuesday, 26 May 2020
Why my anxiety in lockdown is getting better.
The mental symptoms I have are:
- racing thoughts
- uncontrollable over thinking
- difficulties concentrating
- feelings of dread and panic
- feeling irritable
- heightened alertness
- problems with sleep
- heavy and fast breathing
- dry mouth
- fast heartbeat
- extreme tiredness and lack of energy
- dizziness
I am in a state of constant worry and have the inability to relax, switch off.
I have to run every possible scenario through, out loud, to make sense of the situation.
I have to plan for all eventualities.
I can't do anything without thinking about all the possible outcomes.
I do all of this in my head, quietly and silently. If I find myself in a situation I don't like, or it's too busy or I get overwhelmed, I will just walk away and find somewhere quiet to be to get my thoughts straight in my head. I'm not always able to do that when I'm with others, I don't have the ability to explain my thoughts rationally at the time and I just come across as difficult or argumentative and even as having a strop/tantrum as I'm not getting my own way. But that's not what I'm doing, I just need a few minutes headspace, right there and then.
Despite this being a recent diagnosis, I've just assumed this is how life is, I've always been like this.
However since lockdown started my anxieties have almost gone. The only time now I get anxious and the old and familiar feelings return is when I have to go food shopping, but I think that's a very common feeling for almost everyone right now, regardless of any diagnosis or normal patterns of behaviour.
Why have my anxieties gone? Because I'm on my own and I don't have to take part in daily life. I don't have to answer a 101 questions about my plans, where I'm going, how long I'll be, what I'm doing and why.
Obviously my husband and I discuss things, such as finances and we're in the middle of doing up our old family home, we've planned a budget, decided on what I can do, what needs doing and what hubby can do and what can wait until lockdown is over.
In the last two weeks, I've bought a car, had a plumber in, arranged and chosen new carpets to be fitted next week, had the tree in the front garden cut down. Renewed the rental contract in Dubai. I've also painted the upstairs and been working in the garden. I've been stress free throughout.
Why?
I haven't had to worry about anyone else. I've done things in my own time, if I've felt stressed I've been able to change what I'm doing and done something else. I don't have to worry about other people, other than doing my mums online food shop, I can eat what I like, when I like, sleep and bathe at times that suit me.
But this lockdown won't last forever and I'll have to rejoin the real world at some point in time. I've had a well earned break from day to day life and the dramas of others around me. I'm relaxed, I'm off my meds and I'm hopeful of a slower lifestyle, that is chilled and relaxed from now on.
Lockdown is giving me a well needed break.
I will add, I know I'm writing this from a privileged position with not having to worry about home education and finances.
Tuesday, 19 May 2020
Feeling vulnerable during Covid-19
We're used to spending a lot of time apart with his job, travelling and with our family in England, Wales, Northern Ireland and Australia. But we always have an end date, a flight home booked and we often meet up up and join one another on our trips.
We think nothing of booking a flight, jumping on a plane, collecting car hire, sorting hotels and travelling at the drop of a hat, on our own or together. We've had a lot of adventures living in South Africa and Dubai and in between. Raising 5 children between us, one with profound disabilities. Managing lives in different countries, maintaining homes and lives simultaneously and dealing with death.
So yes we're capable, together and on our own we are able top look after ourselves and others when needed.
We're also lonely and isolated. Peter is in Dubai on his own, he is working from home.
I'm in the UK in our former family home but on my own (cat and dog don't count when it comes to feeling vulnerable) and this post isn't about being lonely.
Last Friday morning at 6am I fell down the stairs, I banged my head, my shoulder and jarred my neck. I slipped on the last 5 steps.
Peter had conference calls and wasn't due to ring me till 9am UK time. I'm ok now but it got me thinking....what if?
We have a plan, we've never had to implement it. If I can't get hold of Peter throughout a working day or when he's travelling he will message me in response to my calls to say he's in meetings, he will then phone at the earliest opportunity. When I'm travelling I will send him messages throughout the day, notifying him of my current location and when I'm due to be back at the house or my next destination.
There have been times of minor worries such as when I've taken a 24 hour trip and haven't had access to the internet, but we've still been able to make quick short and expensive telephone calls to say we're ok.
My mum messages or facebooks me everyday, so I know she's OK, if I couldn't get hold of her my niece and her husband live in the town. I've also got a car now so I could drive down. My MIL lives near her daughter and grandchildren, so they are around to check in on her.
The rest of our family and friends live with their partner or have older children at home, or like my husband and youngest child who are working daily and their absence would be noticed.
My next door neighbour and I have joked that the Thursday night clap for key workers has turned into a roll call for the street, but even she has her sister and a nephew dropping off her shopping. I see different neighbours daily, who ask if I need anything and hear them in their gardens and I know they hear me when I'm calling the dog or the cat.
Friends are checking in with me, my friends who I have regular contact with are either abroad or don't know one another. I'm not asking for anyone to take responsibility for me. I'm not vulnerable due to health, but I'm feeling vulnerable after falling down the stairs and realising I could have lain there for about 12 hours before Peter would've put the plan into action.
Just try to remember we're all struggling with this lockdown, whether it's financially, emotionally with home schooling and our health or physically going out to as a key worker everyday that we're all feeling vulnerable right now and that includes those of us who don't have financial or physical problems, children to teach or key worker jobs, we're just going through it differently.
I often feel isolated and lonely, this is the first time I've really felt vulnerable.
Friday, 21 February 2020
Post Comment Love 21st - 23rd February
Since I arrived I've not had 5 minutes to myself. Our youngest child of 5 travelled with me and we visited our eldest child, the oldest boy and his wife and baby, as well as my mum and niece and her family. The the second youngest child arrived with his wife, and the following day my husband arrived and we did the rounds of visiting again. Our middle child lives in Australia, so just catching up with him with video calls.
I've been doing all the driving as I'd hired a car when I arrived, I returned it last week after dropping my husband at the airport. Since then I've been going everywhere on foot, accompanied by Bob who is loving the UK, despite the rain.
We've also worked flat out with the cleaning, redecorating and repairs to our family home, my back aches, my chronic pain has flared up, but so far, I've avoided a migraine.
This relocation business is hard work, I've forgotten how the UK works and there are so many new things for me to discover. I get blank looks when I ask questions about how things work. People look at me and must think I've lost the plot.
The cat and dog are both puzzled by things coming through the front door and run to greet the postman, expecting me to open the door as there is someone there. Post in SA and Dubai is to a PO Box number.
Stephanie and I would love to hear what you've been up to this week.
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