Tuesday 12 October 2010


I suffer with Chronic Neck pain....not Fibromyalgia which they keep trying to fob me off with.
14 years ago I was attacked in the work place.. I sued they paid me next to nothing..I spent a fortune re training and the last 14 years have been spent attending numerous hospital appointments and medication that has had some serious side affects.

It doesn't stop me from doing anything but it causes me immense pain. I live in pain and manage my life around what I need to do and what I want to do. I find it difficult to write anything more than an address on an enverlope, sit for any periods of time, drive long distances either as the driver or a passenger, sleep at night, household chores and even picking my kids up when they were babies.

So this is how it goes......I tried all types of medication but they only mask the pain...side affects, weight gain, loss of appetite, inability to communicate and function, creams that are impossible to apply when you have limited range of movement in your arm, lack of sex drive. I've had numerous surgical procedures including botox, which felt like I was being stabbed with a screw driver.

I have had physio, accupunture at the expense of the NHS and to myself and now because there is nothing they can do to make it better ..they gave up treating me...

I was at the Doctors yesterday and was given medication and told to book my own physio appointment. The clinic in Dudley that allow me to self refer when things get unmanageable which I did in August have just rearranged my appointment for the 3rd time till 30th December......Do you know what is going to happen next? I do and so does my Doctor.. The neck pain becomes unbearable the frequency of my migraines increase and I end up in hospital for any thing up to a week while they try to sort out what the problem is....I'm telling them what the problem is now but they won't listen...and this goes on every bloody year.

Fingers crossed I manage to get to my holiday to the States next week before my next stay in hospital.


  1. Your GP should get his finger out and make a few calls!!

  2. Julia, He is but I have to attempt it first then come back to him when I fail, I've written to both hospital, drs and physio department today echoing the above.