Monday, 28 April 2025
Week 17 2025 One Daily Positive and Project 365 - Meet our latest grandchild.
Friday, 25 April 2025
Word of the Week - Stopped
Time just stopped when Stephanie died on the 7th October 2024. Life goes on and since then we've had 2 new grandsons join our family. One in February 6 days after Stephanie's birthday and one born yesterday that we've yet to meet.
We have 4 grandchildren now and they are our world. When the 5 children were small they were hard work, managing their different needs and activities but Stephanie our eldest was always there and part of it, she was the one who bought our family together. The boys just saw her as their sister and didn't question what she could and couldn't do, just accepted her for who she was, but they all grew up, something that she never got to do.
Another holiday time and time not spent with Stephanie. I'm not getting caught out by events anymore, but it doesn't mean I'm finding events without Stephanie easier. Occupying my time and brain doesn't fill the space, it just highlights how much space I have for her.
We've had a fun filled few weeks with our adult children and grandchildren with lots of Easter activities, camping, days out and time with friends, but there has been no visit with Stephanie, no Easter eggs bought and delivered, no coffees out with her on our way back and forth, calling in to see her on our travels, no taking her out with me while I've done my shopping for everyone else. Different routes driven as there is no need to go via Gloucester anymore.
It's not just Stephanie that died, it's part of our lives that have stopped existing. Being the parent of a disabled adult child, is so very different than being a parent to our other adult children.
All our children left home and live independent lives, including Stephanie. But they have jobs, financial independence, their own homes, partners, children. can make their own decisions, can ask us for advice, talk to their mates, make their own decisions, make their own mistakes, ask for help, ignore us.
They can do anything they want, they can even take themselves to the toilet.
Stephanie left home and moved into supported living, but Stephanie couldn't do any of that. Nothing. Stephanie couldn't speak, feed herself, communicate. Everything Stephanie needed to do, was done for her, other people decided what was in her best interest and every year there were meetings to decide what was in her best interest, she never attended the meetings, it was too disruptive for her, for the meeting.
Her budget, how much, how it was spent, her personal allowance, financial advocate, her staffing levels, her health, her home, her activities, her transport needs, dietary requirements, dentists, meetings for blood tests. Every single thing you do for yourself, every single thing you do for a child, if you can imagine it, it was done for her and every single thing had to be agreed. Not task by task, but yearly, financially and by whom. By us as parents, her carers, social services, health and everyone else who had a financial interest.
It took a lot of our time, not a minute of it was resented, we were grateful of every single bit of support and help we received, but it was time consuming. Phone calls, meetings, emails, forms, assessments, budget cuts, reviews, worry. In between there were problems that needed sorting, staffing issues, safeguarding concerns. 2 years of covid, constant changes of staff, management, ownership of her home, changes of service users, issues with other parents to contend with.
After Stephanie died there was a flurry of activity sorting out her finances, exchanging emails sorting out a few bills, collecting items from her home, a few visits and calls and then nothing.
It all stopped. Everything has just stopped.
Sunday, 20 April 2025
Week 16 2025 One Daily Positive and Project 365 - Happy Easter
3 migraines this week. It's so frustrating. Think the easiest thing to do will be to record when I don't have a migraine or a headache.
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Word of the Week - Acceptance.
There are a couple of things niggling me at the back of my mind that I'm worrying about at the moment. Things I have no control over, but if they happen then life as I know it will change in a big way. It will be devastating and the impact will be huge with a massive ripple effect. It's not health related, it's to do with people.
I've no control over it. But what I do have control over is how I deal with it. I have to accept that people will behave in bizarre ways and whilst their intentions aren't to hurt others, sometimes hurt is inevitable.
Acceptance is hard. My father's death in 2017 was hard. I accepted he had died. I just never dealt with the trauma of his death.
I've accepted our daughter died, but again, it was another traumatic death, that I witnessed, that I didn't walk away from.
I could've left the room on both occasions, but I didn't, I chose to stay put, chose to stay with my father and my daughter as they took their last breaths. I didn't need to for me. I probably didn't need to for them, but something made me stay. I said after watching my father die that I was never going to do it again, but I did and I have to accept that. I chose to stay, however traumatic.
I'm still struggling with both these events. I've been diagnosed with PTSD, I've received targeted therapy, I'm on medication, I've had a mental health plan in place. I've reached the end of the support that is available to me. The help and support I want is not available. The help and support I wanted was in the first few days and weeks.
There was help and support from some amazing people and I will be forever grateful, but it has taken 6 months for me to accept that the people I thought would help just weren't there, they didn't call, they didn't didn't come round, they didn't put aside their differences, they didn't make us their priority.
It's taken 6 months for me to accept this, to move on from questioning why? What did I do wrong for them not to care about us when we needed them the most? For them not to drop everything for us in our hour of greatest need?
With acceptance comes peace. For too long I've been focusing on regret. I realise now people come in and out of your life, some for a long time and some for a short while. But it's the quality of the time spent, not the quantity.
I accept it's hard to know what to say to when someone dies. I've been in that situation so many times.
I accept that it's hard to know whether to call in or worry that'll you'll be intruding.
I accept that while you'll thinking about the above, time passes, then you start to feel awkward about the gap left.
I accept that maybe some people will feel triggered and can't cope.
But no matter how hard you are finding the situation, for us, it was harder than you could ever imagine and that knock at the door, that message, that late night phone call, that invite for coffee, that hug and and even those awkward silences meant the world to us and always will.
We accept our circle of friends and people we can turn to has grown smaller but it has also grown stronger.
Monday, 14 April 2025
Week 15 One daily Positive and Project 365
I was really irritated on Tuesday, Peter was unwell and he asked me to cancel his dental appointment. I called in on the way to work at 8am but they didn't open till 8.15am. I rang at 8.20am and 8.40am but both times the phone was engaged. I had to teach at 8.45am, so I rang back at 9.45am. His appointment had been at 9.10am. they told me I had to pay a cancellation fee of £48 before I could reschedule. I said OK, I'd pay and rebook at 4pm. I then got a lecture about missed appointments. I told her I'd tried calling but the phone was engaged and the receptionist was really hostile and antagonistic towards me. I told her again I would pay after work and hung up. After work I called in, asked to make a payment for a missed appointment, then once the bill was settled I asked to speak to the practise manager and made a complaint. I pointed out the 'we have the right to work in a safe environment' sign and informed her about the morning conversation and whilst I appreciate the staff must face argumentative clients, they need to listen before becoming defensive and they could probably save 50% of the abuse they receive.
We had a lovely day on Monday. It was the 6th month anniversary of Stephanie's death. I'd requested the day off work. My mum had given us a 'In Loving memory Rose' which our grandson and I planted together.
Day 97 A lovely last day with son and grandson. Off to the park, Easter treats and some gardening.
Grandchildren, gardening, camping, school holidays. Birmingham City winning the league.
6 months without Stephanie - Losing a child
Days out in the campervan - Winter 2024/2025
Post Comment Love - Link up with any post on any subject this week
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Word of the Week - Post
No, I haven't been to Kuala Lumpur. This is a post card left over from a trip there in 2023.
I actually wrote it and sent in in March 2025 from the UK.
But for the person who received it this week in South Africa, it wouldn't have been a surprise for them to think it had taken 18 months to reach them.
If you live in a country where things work, you take it for granted.
In the UK we moan about the cost of postage, the late delivery times, items going astray, deliveries to the wrong address. But if you live in a country like South Africa, it's rare that anything makes it to your door at all, ever.
We lived there for 4 years and as an expat, we relied heavily on the post. From birthday cards for the kids from family to letters from friends and important documents such as replacement passports. It was a nightmare.
Even recorded, signed for, deliveries and DHL (other agents are available) had no guaranteee of making it to your door as the postal system just didn't work, so you had a PO Box address that was expensive and even then, you were lucky if anything, ever at all made it into your PO Box.
On many occasions I'd track parcels and letters sent from the UK right to the sorting office and even receive a slip in the PO Box only to be told 'no we don't have it' I'd show them the slip, the tracking number and they would lie to my face or demand a fictional payment to 'look for it' and at that point you knew it had been stolen or in some cases just thrown away.
Once a parcel from my friend was returned to her house 18 months later, having sat someone in South Africa with no attempt ever being made to have delivered it. Another time a parcel was returned from New Zealand, why it went there, I'll never know.
There were times when empty envelopes arrived with no letter inside, just a torn envelope.
I would have even less success posting items from South Africa, even post cards could take months to arrive in the UK. I'd wait till family and friends visited or Peter was travelling and get them posted in the UK and I'd write my Christmas cards in August and leave them with my mum, when I was over on a visit, to post in December.
After we left South Africa, I posted a birthday card to a friend, I asked at the post office for a certificate of postage, even the woman who sold me the stamp said not to bother as she didn't expect it to get there.
I'm off to Paris in June to see for my friend for a weekend, it's becoming an annual trip. I will write the birthday and Christmas cards and some letters for her to take home with her like I did last year, she will arrive with letter etc like last year also for and from a couple of friends. She is my post mule.
It was her house I sent the post card to, the post card was for a mutual friend. For some reason her postman will deliver the post, the friend it is intended for, for some reason, her postman seems to just bin all her cards and letters.
And then little miracles would happen, a letter would arrive address like this, within 10 days of being posted and you'd wonder just how it made it through.
Friday, 11 April 2025
11th - 13th April 2025 Post Comment Love
Welcome back to #PoCoLo with Stephanie from Bosworth.Life and I.
Post Comment Love #PoCoLo is a friendly weekly linky where you can link up any blog post you've written this week. If you're new or a regular visitor we're sure you'll find something of interest.
School breaks up today and I'm off work for two glorious weeks, fingers crossed the weather stays nice. We're camping this weekend in the Forest of Dean, spending time with our grandchildren and taking our granddaughter to Chepstow Castle on Saturday and an Easter Party on Sunday.
We spent last weekend with our grandson who came to visit with his dad and his dog and in less than 2 weeks our 4th grandchild, a boy will be born.
Stephanie and I are taking a break for 2 weeks and we'll be back with you on the 2nd May the bank holiday weekend.
If you celebrate Easter, I hope it's a good one for you and the weather stays good for you.
We'd also appreciate your help spreading the #PoCoLo word on Twitter, tag us and we'll RT. You can find us on twitter here: Stephanie - @BosworthLife and Suzanne - @ChickenRuby
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Days out in the camper van. Winter 2024/2025
There hasn't been as many days out in the van and even less camping than I'd hoped for over the winter due to family circumstances.
We've also had a few problems with the van and needed a new leisure battery and now have a water pump to fix.
The van decided to tow an imaginary trailer. it even showed up in the reversing camera. it was a real hazard when driving as it kept flashing on the screen interfering with the control panel and constant pinging as vehicles came near it. unfortunately there repair costs weren't imaginary.
I did manage one night away in the Forest of Dean. it gave me chance to sort a few things out inside the van.
Monday, 7 April 2025
6 months without Stephanie - Losing a child.
Two weeks ago I spent Sunday in same day Emergency Care at Worcester Royal hospital with a migraine and not getting home till 1am on Monday morning, I was exhausted. I went to see the GP first thing and made a plan to withdraw from the anti depressants which side effects have been headaches and haven't been helping. I'm at the stage now where if I choose to talk about Stephanie, I'm ok and no longer feel that counselling will benefit me as the process is causing me a lot of stress by taking me back to places that is causing me a lot of upset that I have made peace with, accepted and have been able to move on from. It is triggering and I can't deal with it. What does cause me the greatest trauma is Monday mornings, the bin lorry, the tulips by the front door yet to flower (planted after her funeral) medical appointments, ambulances with sirens and hospitals.
I am however dealing with all of this. I'm very calm. I cope better on my own. I'm quiet. I'm switched off. I do my own thing. I don't feel the need to explain why I've switched off, retreated into my own protective bubble of peace. I look at photos' I twiddle the ring I had made with Stephanie's name. I watch a video I have of her, listening to her giggle. I smile, I remember the happy times and in my head I go back to all the places that were just mine and hers. I cry. I accept that apart from Peter there is no one else to share our grief with. We don't grieve at the same time, we don't grieve over the same things.
There is no one else for us to share the memories with, there is no one to else who misses her, there is no one else who is impacted by her loss like we are.
I'm jealous of others who have lost a child who share their grief with their families, grandparents, siblings, in laws, their Childs friends, schools, the wider community.
Stephanie was 36. She had no friends, no job, no partner, no social groups, no community she belonged to. She lived in supported living. She was cared for 24/7. She went horse riding. She did not communicate. She relied on others 24/7. Yes, people knew who she was, her neighbours, who complained about the high foot traffic and taxis and parents visiting and the noise spoiling their neighbourhood. We were screamed at once by a neighbour who said we had no idea what it was like having all these people in and out the cul de sac 24/7 disrupting the peace and spoiling their enjoyment of the garden in the summer with the noise coming from the bungalow. Yep, for real. I just screamed back in her face to 'eff off' One of my finest moments.
The staff turn over was high, the were some regulars who truly cared for Stephanie and had been there many years and were devastated by her death, but they weren't their for us, they were traumatised by their own grief and the only time we could see them is whilst they are on a paid shift looking after the other residents.
Three of them were there with us the night Stephanie died, it was a traumatic and sudden death. As a member of staff they had to return to the house, return to work, They had their own trauma to process. As parents we had a different trauma to deal with. We're moving in different paths.
There's no one sharing stories, photo's, memories on facebooks. No one coming up to us and sharing stories of Stephanies life. We knew it all, we fought every battle, every penny that was spent, we knew about, every medical appointment, every item of clothing that was bought for her, every place she ever went we knew about. There were no surprises to find out about after she died, no new things to learn about her.
Everyone else's experience with Stephanie was with us, me and Peter. The kids memories of Stephanie are as children. Whilst Stephanie remained a child both physically and mentally, they grew into adulthood and moved away. Their visits home and with Stephanie were with us. Their time limited. Stephanie loved the boys when they rolled and jumped and played with her. We just all grew up around her, whilst she stayed the same. She knew who we all were, but not who we were, if that makes sense.
Everything to know about Stephanie was already known, there was nothing left for her to have done. She'd achieved everything she was capable of achieving and that was by the time she was 8, the time I first met her, the time she started to walk, her greatest achievement.
It was 26 weeks ago today to the hour (when this post was scheduled) that Stephanie died. 6 months. Half a year. I wrote this 2 weeks ago, it was the first day, that I was able to write this, read it back and not feel pain. I cried a flood of tears, it took me all day to write it. I managed to read it back in one go and make edits as I went, but the raw pain was no longer there and that in itself made me feel sad.
I don't want to hang onto that feeling, it physically hurt and I'm sure it will hurt again, but for the first time, I was able to breath, without gasping for air, without breaking down, without reliving that night.
It's been a long and painful road. I've lost friends along the way. I've struggled with work. I've become withdrawn from certain things and certain people. There are a lot of things I no longer have time or the patience for. There are lots of things that no longer matter.
I'm not strong, I never have been, my exterior walls have built up over the years for a reason, to protect myself from hurt and pain, but Stephanie's death, nearly destroyed me. I can't rebuild those walls, there is no need to, nothing else could ever hurt me that much ever again.
Week 14 2025 One Daily Positive and Project 365
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