Thursday, 14 August 2025

Word of the Week - Bowels

Yes, BOWELS. You read that right the first time.

I'm fundraising for Bowel Research in memory of our daughter Stephanie who died on October 7th 2025.

We requested no flowers at her funeral and didn't have a charity in mind at the time.

She was taken ill in the morning. Died in the evening and her funeral was held 8 days later. There was too much to do with arranging for children to fly in from Africa and Australia and just the sheer shock of her death.

I want to mark the first anniversary of her death and I've found an organised walk I can join in with on September 27th.

So why Bowels? 

Stephanie died from an Ischemic Bowel. She wasn't able to communicate, she couldn't tell anyone she was in discomfort, in pain. She didn't reflect pain in her emotions. Often she would laugh even when injured, she might just cry for no reason at all. So by the time Stephanie reached the hospital for help, it was too late. A stoma was not an option, it was too advanced and she died on the operating table.

Our grandson, now 3 was born with Hirchsprung disease and spent several months in his first year with a stoma bag and had numerous operations. 

I've was diagnosed with diverticulitis after a colonoscopy and biopsy. I don't have any pain or even any symptoms other than chronic constipation caused by my new migraine medication.

I'd really appreciate it if you could share my Just Giving Site on your social media sites. I'm aiming for £1000 and already a third of the way there.


Why a walk?

The one thing that Stephanie could do independently was to walk, we used to call her Forrest Gump when she was younger. She'd just head off in any direction she fancied. We had to guide her and she had no spacial or risk awareness and you couldn't take your eyes off her. She would grab onto a pram in the street or a trolley in the supermarket to steady herself if she had to stand still and would go off in a total different direction with us playing catch up.
As she got older, she walked less, swam less, rode a horse less, bounced on the trampoline less, moved around less.

Stephanie was 36 years old when she died.



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