The thing is apart from random pain in my thigh and hip bones and a general feeling of lethargy, I’m not actually sick, however my blood test results over the past 16 months are telling the doctors otherwise and they keep calling me back in for more tests including a bone marrow biopsy in May to rule out cancer.
Finally my white blood cell count has stabalised, it’s still elevated but with no baseline to measure it by, it could just be my normal level.
Since February this year I’ve been taking iron tablets and yet my levels are still dropping, I’ve also been receiving monthly Vit B12 injections and daily tablets yet my levels are not rising either.
I went to the Doctors in June 2017 with a migraine that had lasted 9 days and pain behind my left eye. I’ve suffered with migraines since I was a baby. Every 18-24 months I get one so bad I need medical assistance to sort it out. I have 2-3 migraines every month and I am a chronic migraine sufferer as it impairs my ability to function for 2-3 days each time. I have aura’s, sight is blurry, I can smell burning toast and my cognitive ability is affected. I take medication at this point but most times it doesn’t work.
I also have chronic pain in my neck and nerve damage that affects my fine motor movements, I live in constant pain, it also makes my migraines worse. This was a direct result of an assault 22 years ago. Usually when the migraines get worse it’s due to my neck and I get help and support with that also.
But after the last big migraine, I developed a chesty cough and started getting random shooting pains throughout my body, mainly in my legs and hips. I didn’t go back to the doctors, I put it down to stress after my father died in the July and on my return to Dubai in November I was diagnosed with walking pneumonia, that cleared up but I still had a cough which turned out to be reflux and has settled down with over the counter medication.
I spent 3 months under the care of an oncologist this year, that was frightening, after the bone marrow biopsy she referred me to a different GP to test for coeliac disease (border line) and I’m now under the care of a gastroenterologist for further tests to find out why my body just refuses to absorb iron and B12.
As I live with chronic pain it makes it difficult for me to identify when I’m ill outside of this. 4 weeks ago I twisted my ankle, I casually mentioned it to the doctor last week, I’ve torn the tendons and it’ll take a further 6+ weeks to heal and is now heavily strapped.
But apart from the migraines, the neck pain, the torn tendons, feeling tired all the time (not lacking the will to do anything) and the random bone pains, I’m actually feeling ok, until the doctor calls me back in as there are concerns with the results of my latest blood tests and we explore an other avenue to try and get to the bottom of it.
I’ve got a new symptom now, excessive salvia that I’m constantly sucking from the inside of my cheeks, but my tongue feels dry as does the roof of my mouth and the skin is peeling on my feet. My husband is sick of me being sick, but not half as much as I am.